There were many many days I believed with every part of me that this would never happen but there were also many many days where I fought with every part … Continue reading The end: Back on trach!
As Mummy & Daddy stood on the doorstep, with us both tucked up sleeping in bed, Mum held back the tears. They have stood on the doorstep and clapped for … Continue reading Somewhere over the rainbow…
‘I came in like a wrecking ball’ quite aptly played via Alexa as I closed the front door after the nursery run. That empty feeling I always get when the … Continue reading Wrecking ball
Even those closest to me often struggle to know how to interact with me. This may be because of my tracheostomy and my inability to talk, but it may also … Continue reading Rory’s Top 10 Tips!
We are almost 4 years on from the end of our IVF journey, our premature birth and our 99 day NICU stay. We are 3 years on from a very … Continue reading What matters to ME now – World Prematurity Day 2019
And just like that, another disappointment. Another dashed hope. Another dead end. You may have remembered me writing about the conversation we had with a speech and language therapist at … Continue reading No Blow!
literally. September has been a difficult month all round but we have made the most of those snippets of good times too. The first half of the month is here So … Continue reading September Sucks!
This morning we had a lazy morning playing in the play room. Rory’s play has developed massively over the past 6 weeks, he will role play, pushing the baby around … Continue reading Summer 2019 – Day 42
Whilst today was a bit of a wash out, it was also a significant date for the diary! Our plans were cancelled today because we still aren’t 100% and have … Continue reading Summer 2019 – Day 39 *WE DID IT!*
Thursday was a big day! It was the last tube change for Rory with his new PA Jaime. Everything was riding on this last appointment and Rory was unwell. He … Continue reading Summer 2019 – Day 34 & 35
We are officially half way through the holidays. Today we spent the morning at Louie’s house with his wonderful Mummy. Rory ran through the door and made himself at home … Continue reading Summer 2019 – Day 21
Today was mostly focused on the community nurses coming to do the next part of the training for Jaime. I had managed to accept that this was a means to … Continue reading Summer 2019 – Day 20