And just like that, another disappointment. Another dashed hope. Another dead end. You may have remembered me writing about the conversation we had with a speech and language therapist at … Continue reading No Blow!
Today I had an appointment with a new Doctor. And he has a plan. I don’t know if you remember when I had my last operation, and Dr Ravi found … Continue reading The New Doctor has a plan…
We spent this afternoon at Sheffield Children’s Hospital with Rory. It was his 3 monthly consultant appointment with Dr Rob from Respiratory. We have been very lucky to have some … Continue reading Green light for Rory!
What a week that was. The fact that we are just getting round to blogging about it on a Tuesday night says a lot about the affairs in our house … Continue reading Upside down, inside out.
Every night after the bath, I do Rory’s tracheostomy cares. This involves taking the stoma pad away, being careful not to pull the trachy tube out too far whilst doing … Continue reading Catwalk through intensive care!
It has been a difficult month for many reasons. In the most part because Mummy fights with all she has every single day to give us the best chance she … Continue reading No Control and losing her soul!
Ironically, today is world smile day. Today also marks two years since that life-saving tube was placed into Rory’s windpipe. Looking back on our trachy life, Mummy read the first … Continue reading Off Trach 2!
When we wrote our last blog on 26th September, we had spent two days at home and not at nursery because nursery had a sickness bug and Mummy kept us … Continue reading 🎧 Just keep breathing and breathing and breathing 🎵
The summer is going so quickly. Mummy was talking about it with other mummies. They were saying how it is so easy to get caught up in the social media … Continue reading Awesome August 2 of 4
We read somewhere that today is international neonatal nurse day and so we thought we would take a moment to think about what neonatal nurses do and thank them for … Continue reading Thank you!
So we promised to blog every day in July. It probably was a little ambitious. Especially seen as July is gala time and Mummy is super busy organising the Mates … Continue reading Throw back Thursdays!
Since I had my new tube, mummy daren’t sleep. She has swapped shifts with daddy so that one of them is off duty but she still daren’t sleep when it’s … Continue reading On duty!