What a week that was. The fact that we are just getting round to blogging about it on a Tuesday night says a lot about the affairs in our house … Continue reading Upside down, inside out.
Every night after the bath, I do Rory’s tracheostomy cares. This involves taking the stoma pad away, being careful not to pull the trachy tube out too far whilst doing … Continue reading Catwalk through intensive care!
It has been a difficult month for many reasons. In the most part because Mummy fights with all she has every single day to give us the best chance she … Continue reading No Control and losing her soul!
Ironically, today is world smile day. Today also marks two years since that life-saving tube was placed into Rory’s windpipe. Looking back on our trachy life, Mummy read the first … Continue reading Off Trach 2!
When we wrote our last blog on 26th September, we had spent two days at home and not at nursery because nursery had a sickness bug and Mummy kept us … Continue reading 🎧 Just keep breathing and breathing and breathing 🎵
The summer is going so quickly. Mummy was talking about it with other mummies. They were saying how it is so easy to get caught up in the social media … Continue reading Awesome August 2 of 4
We read somewhere that today is international neonatal nurse day and so we thought we would take a moment to think about what neonatal nurses do and thank them for … Continue reading Thank you!
So we promised to blog every day in July. It probably was a little ambitious. Especially seen as July is gala time and Mummy is super busy organising the Mates … Continue reading Throw back Thursdays!
Since I had my new tube, mummy daren’t sleep. She has swapped shifts with daddy so that one of them is off duty but she still daren’t sleep when it’s … Continue reading On duty!
So, Grandad being off work with his arm following his operation meant that Nannie wasn’t on her own and so it was much easier to arrange for us to spend … Continue reading No-Sleep-over
When we were transferred to Barnsley and our initial stay at Jessops, it was a huge deal. The nurses and families on the NICu at Sheffield we’re our family. We … Continue reading Please Help!
Our journey itself is a miracle but without the NHS it would have been a non-starter! If it wasn’t for the NHS Mummy wouldn’t have been able to have all … Continue reading 🎈70 Years 🎈