Summer 2019 – Day 39 *WE DID IT!*
Whilst today was a bit of a wash out, it was also a significant date for the diary! Our plans were cancelled today because we still aren’t 100% and have … Continue reading Summer 2019 – Day 39 *WE DID IT!*
Tag: parent carer
Summer 2019 – Day 20
Today was mostly focused on the community nurses coming to do the next part of the training for Jaime. I had managed to accept that this was a means to … Continue reading Summer 2019 – Day 20
Summer 2019 – Day 19
I spent two hours lay in bed this morning, my entire body aching from tension. Pressure. Stress. Anxiety. Feeling like I’m failing. Feeling under pressure. Potty training, speech and language, … Continue reading Summer 2019 – Day 19
Summer 2019 – Day 12.
To the lady wandering around in circles on the field at the bottom of my road, sobbing down the phone to her friend, your friend is right – it’s going … Continue reading Summer 2019 – Day 12.
Catwalk through intensive care!
Every night after the bath, I do Rory’s tracheostomy cares. This involves taking the stoma pad away, being careful not to pull the trachy tube out too far whilst doing … Continue reading Catwalk through intensive care!
Searching
Here I am, hid away in the office with a cup of Yorkshire and a few strawberries in my Cadbury chocolate yoghurt (i’m a Galaxy girl but its desperate times) … Continue reading Searching
Austin and Rory 