Even those closest to me often struggle to know how to interact with me. This may be because of my tracheostomy and my inability to talk, but it may also … Continue reading Rory’s Top 10 Tips!
If you read our blogs religiously then you will know exactly what the crack is with our Joanne Jones journey, if you don’t then i’m going to try and tell … Continue reading Joanne Jones – One Year On
I think we take the art of communication for granted. It’s getting harder and harder for Rory because he is learning more and more about the world, his needs and … Continue reading Communication!
We had a rough night, lots of suctions for Rory who was unsettled, he had taken his nose off and sucked on it for comfort, which then dried him out, … Continue reading Mums view!
We left nursery on Friday with a bad cough, temperature and lots of snot and suction. Great. It wasn’t anything major and we hoped it wouldn’t develop into anything. We … Continue reading Gooaaalll!
So the Easter holidays have drawn to an end. We have been up to all sorts of adventures; Mummy and daddy finished our garden and we played out lots and … Continue reading We go again!
I started pre-school in September but due to lack of nurse-cover and once or twice when we did have a nurse but I wasn’t well enough to attend, I have … Continue reading Pre-school Positivity!