Thursday was a big day! It was the last tube change for Rory with his new PA Jaime. Everything was riding on this last appointment and Rory was unwell. He … Continue reading Summer 2019 – Day 34 & 35
Today was mostly focused on the community nurses coming to do the next part of the training for Jaime. I had managed to accept that this was a means to … Continue reading Summer 2019 – Day 20
What a week that was. The fact that we are just getting round to blogging about it on a Tuesday night says a lot about the affairs in our house … Continue reading Upside down, inside out.
That’s right peeps, we might be a little late, or perhaps not even arriving at the station when it comes to speech and language, but Austin can say Santa (well, … Continue reading Ant-A!
I’m sat here in the office at Austin & Rory’s pre-school, with a teddy almost as big as me and a shell of Santa hanging behind me with little donkey … Continue reading exceeding #mumlife
As we all held hands and walked home in the dark, the Mates of Milton Christmas fireworks finishing off in the background, Mummy and Daddy couldn’t help but get all … Continue reading #perfectchristmas
Ironically, today is world smile day. Today also marks two years since that life-saving tube was placed into Rory’s windpipe. Looking back on our trachy life, Mummy read the first … Continue reading Off Trach 2!
When we wrote our last blog on 26th September, we had spent two days at home and not at nursery because nursery had a sickness bug and Mummy kept us … Continue reading 🎧 Just keep breathing and breathing and breathing 🎵
We all know that Mummy would have liked a nice photograph of us both, all in uniform, against a bright white wall, both smiling at the camera like the standard … Continue reading Pre-School Officials!
Mummy felt brave. She took us to the pharmacy to collect a prescription. On foot. By herself. In fairness to us, we had just woken up and as happy as … Continue reading Awesome august 3 of 4!
The next chapter of our life, much better written by me than Austin and Rory, in their eyes they go to this great place with other kids where they can … Continue reading The next chapter…
We all decided to hire a narrowboat for the day, to spend some family time together. Mummy and daddy were anxious, we aren’t like a ‘duck to water’ when it … Continue reading Our first boat experience!